LIBRARY

Hearing a diagnosis for the first time or getting a fuller picture of one you already suspected can be a lot to absorb in one sitting. Going in prepared won't make it easy, but it can make it easier to walk out with what you actually need. Before the appointment Write a short symptom or change timeline. When did you first notice something was different, and how has it changed since? Doctors almost always ask for this first, and it's easier to answer from notes than from memor

Caring for an aging parent, a spouse with a chronic illness, or a family member with a disability is one of the most demanding jobs a person can take on — and it rarely comes with a manual. That's where the Family Caregiver Alliance (FCA) comes in. Since 1996, this San Francisco-based nonprofit has been a leading voice supporting the millions of Americans who care for loved ones at home, and its website's Caregiver Resources hub is one of the most practical starting points fo

1) What is your name, and would you like to stay anonymous? I would like to stay anonymous. 2) Who is the person you are caring for? Why are you caring for them? My dad who is 91 and was diagnosed with dementia 6 years ago. 3) What does a typical day look like for you and the person you care for? I wake my dad up around 7:30 and start getting him ready for to go to his adult day care. He can dress himself but he needs help and prompts or he will forget and wear dirty clothe

If you've ever stared down a huge list of caregiving to-dos and thought, "I have no idea where to even start," the Caregiver Action Network (CAN), listed on our Resources page as the National Caregiver Action Network, was built for exactly that moment. CAN is a national nonprofit (officially the National Family Caregivers Association, doing business as Caregiver Action Network) based in Washington, DC. Its mission is simple: improve the quality of life for the millions of Ame

What is your name, and would you like to stay anonymous? HR. Yes, but my initials are fine as well. Who is the person you are caring for? Why are you caring for them? My mother, who is now in her 80s. She suffers from Parkinson’s disease, along with diabetes. There isn’t much of a why when it comes to the reason I am caring for her, because she is my mother after all. What does a typical day look like for you and the person you care for? My mother lives with my father, who'

Caring for a loved one brings unique challenges that many people face alone. Caregiver Collective exists to create a space where caregivers can openly share their struggles, stories, advice, and questions. This website aims to form a community built on understanding, support, and practical help for those who give so much of themselves every day. What You Can Find Here This website is designed to be a hub for caregivers to: Share personal stories about their caregiving journey